World Federation of Hemophilia is a 5-star, financially transparent charity. It has an A- Results Reporting grade, which is above average. The charity's reserves can cover its annual program spending for over two years. For every dollar donated to the charity, 88 cents are available to go to the cause, which is within Ci's reasonable range.

Founded in 1963, World Federation of Hemophilia (WFH) is an international health charity that works to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. WFH partners with healthcare providers, governments, and national member organizations in 147 countries. The charity provides healthcare providers with the tools to identify, support, and treat people living with bleeding disorders. The charity also operates various education and advocacy initiatives to raise awareness and improve access to treatment and care. WFH’s 2022 Annual Global Survey reports there are 427,685 patients with blood disease; however, WFH estimates that over two-thirds of expected people living with hemophilia worldwide have not been identified and diagnosed. WFH estimates that 17.1/100,000 males have hemophilia.

A Charity Intelligence 2024 Top 100 Rated Charity.

WFH's Humanitarian Aid program represented up 41% of program spending in 2023. The charity works to improve the lack of access to care and treatment by supporting national member organizations (NMOs), healthcare practitioners, and hemophilia treatment centres. In 2023, 1,537 new people received humanitarian aid. Thus far in 2024, the charity treated 22,220 bleeds, performed 1,374 surgeries, and supported 12,524 patients.  

The charity's Healthcare Development programs represented up 32% of total program spending in 2023. WFH monitors product safety, supply, and access; issues advisories related to treatment safety and supply; monitors new treatments' development and regulatory status; and develops new national member organizations. In 2023, WFH added four new NMOs to the Annual Global Survey.  

Education, Public Policy, and Research programs represented the remaining 28% of program spending. WFH provides national, regional, and global training programs and initiatives. Current training focuses on identifying and treating bleeding disorders and data collection. The charity conducted an NMO survey to collect data on the diagnosis and treatment of patients with WGBD. In 2023, four new NMOs joined the global survey. 2,472 new patients registered in the WFH World Bleeding Disorders Registry. The charity also developed training curricula to be piloted in two countries as part of its Outreach and Diagnosis Initiative. The charity operates an educational platform called WFH eLearning. The platform features over 900 educational resources, including educational videos, webinar recordings, interactive learning modules, and online tools. Official WFH translations are available in seven different languages.

World Federation of Hemophilia received $5.4m in donations in 2023. The charity also received $7.2m in international donations (from WFH USA). WFH received $311.5m in donated goods in kind, which is 94% of revenue.  WFH spent $11.4m on its programs, which is 61% of revenue (excluding donated goods). The charity recorded a surplus of $4.6m, which is 25% of revenue (excluding donated goods).

WFH spent $615k on fundraising, which is 11% of donations. Administrative costs are 1% of revenue (less investment income and donated goods). Overhead spending is 12%.  For every dollar donated to the charity, 88 cents are available to go to the cause, which is within Ci’s reasonable range.

WFH has $24.4m in reserve funds, which can cover 215% or two years and nine months of its annual program costs.

This charity report is an update that has been sent to World Federation of Hemophilia for review. Changes and edits may be forthcoming.

Updated on September 20, 2024 by Liam Chapleau.

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