Cystic Fibrosis Canada

2323 Yonge Street, Suite 800
Toronto, ON M4P 2C9
President & CEO: Norma Beauchamp
Board Chair: James Mountain

Charitable Reg. #:10684 5100 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 4/4]

✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

B+

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

75%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 75 cents are available for programs.



My anchor

Programs

About Cystic Fibrosis Canada:

Founded in 1960, Cystic Fibrosis Canada (CFC) is committed to finding a cure for cystic fibrosis (CF). The charity also supports and advocates for high-quality individualized cystic fibrosis care and raises public awareness through its education programs. CF is the most common fatal genetic disease affecting Canadian children and young adultscausing destruction and loss of function of the lungs, which eventually leads to death in most people with CF.  

Many of the biggest advancements in CF researchincluding the discovery of the CF gene in 1989have been made by researchers funded by Cystic Fibrosis Canada. In F2019, CFC invested $6.1m to fund 45 research projects and 29 postdoctoral fellowships, making up 54% of program costsResearch topics include gene therapy, CF-related diabetes, lung inflammation, personalized medicine, CFTR proteins, quality of life and lung infections. In July 2018, CF Canada launched CFC Accelerated Clinical Trials Network to build capacity to run clinical trials and increase the participation of CF patients in clinical trials 

In F2019, 30% of program costs were allocated toward CFC’s clinical care and advocacy programs. The charity supported 42 CF clinics, awarding each with Clinic Incentive grants for continued professional development and for travel costs to outreach centresThe 42 clinics support 4,300 Canadians across the country.  

Cystic Fibrosis Canada also has Education and Public Awareness programs that make up 15% of program costs. The 2017 Cystic Fibrosis Awareness Month campaign resulted in 12,601 Canadians signing a petition calling for public coverage of ORKAMBI, the medication used to treat the most common type of CF.  

Other program costs make up the remaining 1% of program costs.  

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Results and Impact

Since 1960, Cystic Fibrosis Canada has invested more than $261m in research, innovation and care of CF. The 2016 Canadian Cystic Fibrosis Registry shows that the median age of survival in Canada is steadily increasing and is among the highest in the world at 53.3 years.  

Since 2006, CF Canada has been calling on the Quebec government to adopt newborn screening for early detection of CF. In 2017, Quebec was the last province to commit to newborn screening for CF, and the program launched in spring 2018. 

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Finances

Cystic Fibrosis Canada is large charity, receiving $17.0m in donations and special event fundraising in F2018. Administrative costs are 17% of revenues, excluding investment income. Fundraising costs are 9% of donations and special event fundraising. For every dollar donated, 75 cents go tCFC’s programs. This is within Ci’s reasonable range for overhead spending. CFC’s funding reserves of $14.0m include $94k in donor-endowed funds. Excluding endowed funds, the charity's reserves can cover program costs for 1.2 years. 

This charity report is an update that has been sent to Cystic Fibrosis Canada for review. Changes and edits may be forthcoming. 

Updated on June 4, 2019 by Caroline McKenna. 

Financial Review


Financial Ratios

Fiscal year ending January
201820172016
Administrative costs as % of revenues 16.5%16.5%15.1%
Fundraising costs as % of donations 8.7%8.3%6.3%
Total overhead spending 25.2%24.7%0.0%
Program cost coverage (%) 123.7%142.7%147.6%

Summary Financial Statements

All figures in $000s
201820172016
Donations 16,36415,37016,428
Business activities (net) 552722522
Special events 670666862
Investment income 924972(56)
Other income 357161219
Total revenues 18,86717,89117,975
Program costs 4,1623,5793,401
Grants 7,1576,9837,323
Administrative costs 2,9602,7852,716
Fundraising costs 1,4861,3241,097
Other costs 04(28)
Total spending 15,76514,6710
Cash flow from operations 3,1023,2163,466
Capital spending 000
Funding reserves 13,99615,07615,830

Note: Ci did not report amortization of deferred capital contributions as revenue and included realized and unrealized investment income, affecting total revenue by $910k in F2018, $958k in F2017, and ($70k) in F2016. Ci backed out amortization of capital assets from program costs to report on a cash basis.

Salary Information

Full-time staff: 80

Avg. Compensation $77,445

Top 10 staff salary range

$350k +
0
$300k - $350k
0
$250k - $300k
1
$200k - $250k
0
$160k - $200k
3
$120k - $160k
5
$80k - $120k
1
$40k - $80k
0
< $40k
0

Information from most recent CRA Charities Directorate filings for F2018

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Comments & Contact

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Charity Contact

Website: www.cysticfibrosis.ca
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