Cystic Fibrosis Canada

2323 Yonge Street, Suite 800
Toronto, ON M4P 2C9
President & CEO: Kelly Grover
Board Chair: Leona Pinsky

Charitable Reg. #:10684 5100 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 4/5]

FINANCIAL TRANSPARENCY

Most recent Audited financial statements available on the charity’s website.

A-

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

51%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 51 cents are available for programs.



My anchor

Programs

About Cystic Fibrosis Canada:

Founded in 1960, Cystic Fibrosis Canada (CFC) aims to end cystic fibrosis by funding research for a cure and advocating for high-quality patient care. Cystic fibrosis (CF) is an inherited disease that can cause severe damage to the lungs, digestive tract, and other organs. It involves uncontrolled mucus buildup in the body, which can lead to nutrient deficiencies, chronic infections, and death in most patients. Cystic Fibrosis Canada states that CF is the most common fatal genetic disease affecting Canadian children and young adults. It currently estimates that more than 4,370 Canadians live with CF. CFC’s main office is in Toronto.

Cystic Fibrosis Canada runs four main programs: Research, Healthcare, Education, and Advocacy.

Research represented 51% of program spending in F2020. CFC’s research funding has resulted in many significant developments in CF research, including the discovery of the CF gene in 1989. In 2019, Cystic Fibrosis Canada funded 45 research projects and 27 post-doctoral or graduate fellowships. Research topics included CF-related diabetes, lung inflammation, and personalized medicine. 

Healthcare programs made up 20% of program costs in F2020. CFC funds a network of 42 CF clinics across Canada. The charity also runs an Accreditation Site Visit program to ensure accountability by reviewing each clinic’s programs on a rotating basis. It visited four clinics in 2019, determining that each provided the highest level of care available for patients.

Education programs were 19% of program costs. CFC maintains the Canadian Cystic Fibrosis Registry, a collection of national CF patient data to measure trends in CF and improve understanding of CF among medical professionals. The most recent report on the CFC registry from 2018 found that 18% of CF patients must travel over 250 km to receive care. Cystic Fibrosis Canada aims to use this data to inform future patient care initiatives.

Advocacy represented 9% of program costs. Cystic Fibrosis Canada runs provincial and national advocacy campaigns to raise awareness and increase support for CF patients. In January 2019, CFC held a one-day forum to bring together patient groups, researchers, and activists to discuss improved personalized care. It also helped develop an eight-part webinar series on CF and family planning.

My anchor

Results and Impact

Cystic Fibrosis Canada advocates for provincial and federal governments to increase access to CF treatments. For instance, CFC has frequently lobbied for public coverage of ORKAMBI, a medication used to treat common forms of CF. Following CFC’s advocacy efforts, Alberta, Ontario, and Saskatchewan established new prescribing criteria in February 2019 to identify patients who qualify for ORKAMBI coverage.

While Ci highlights these key results, they may not be a complete representation of Cystic Fibrosis Canada’s results and impact.

My anchor

Finances

Cystic Fibrosis Canada is a Large charity with $15.4m in donations in F2020. Administrative costs are 12% of revenues (less investment income) and fundraising costs are 37% of donations. This results in total overhead spending of 49%. For every dollar donated to the charity, 51 cents go to the cause. This falls outside of Ci’s reasonable range for overhead spending, which has been the case for the past three years.

CFC has $8.9m in total funding reserves, of which $94k is donor-endowed. Excluding donor-endowed funds, the charity can cover 81% or nearly ten months of annual program costs with its reserves.

This charity report is an update that has been sent to Cystic Fibrosis Canada for review. Changes and edits may be forthcoming. 

Updated on August 17, 2020 by Eric Zhao. 

Financial Review


Financial Ratios

Fiscal year ending January
202020192018
Administrative costs as % of revenues 12.2%18.7%16.5%
Fundraising costs as % of donations 37.0%36.9%34.9%
Total overhead spending 49.2%55.7%51.4%
Program cost coverage (%) 81.3%90.1%122.9%

Summary Financial Statements

All figures in $000s
202020192018
Donations 15,36716,09916,378
Business activities (net) 451341552
Special events 0472670
Investment income 65828924
Other income 572432357
Total revenues 17,04817,37218,881
Program costs 5,2254,6204,162
Grants 5,5997,0657,157
Administrative costs 2,0033,2482,960
Fundraising costs 5,6906,1225,946
Total spending 18,51721,05520,225
Cash flow from operations (1,469)(3,683)(1,344)
Funding reserves 8,88710,62313,996

Note: Ci included realized and unrealized gains (losses) on investments, affecting total revenues by $658k in F2020, $28k in F2019, and $924k in F2018. Ci included direct fundraising costs, affecting total expenses by $4.1m in F2020, $4.6m in F2019, and $4.5m in F2018. To report on a cash basis, Ci removed amortization from program costs.

Salary Information

Full-time staff: 72

Avg. Compensation: $95,249

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
0
$160k - $200k
3
$120k - $160k
5
$80k - $120k
2
$40k - $80k
0
< $40k
0

Information from most recent CRA Charities Directorate filings for F2019

My anchor

Comments & Contact

Comments added by the Charity:

No comments have been added by charity

Charity Contact

Website: www.cysticfibrosis.ca
This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 1-800-378-2233

Print