Cystic Fibrosis Canada
STAR RATINGCi's Star Rating is calculated based on the following independent metrics: |
✔+
FINANCIAL TRANSPARENCY
Audited financial statements for current and previous years available on the charity’s website.
B+
RESULTS REPORTING
Grade based on the charity's public reporting of the work it does and the results it achieves.
n/r
DEMONSTRATED IMPACT
The demonstrated impact per dollar Ci calculates from available program information.
NEED FOR FUNDING
Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.
75%
CENTS TO THE CAUSE
For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 75 cents are available for programs.
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Programs
About Cystic Fibrosis Canada:
Founded in 1960, Cystic Fibrosis Canada (CFC) is committed to finding a cure for cystic fibrosis (CF). The charity also supports and advocates for high-quality individualized cystic fibrosis care and raises public awareness through its education programs. CF is the most common fatal genetic disease affecting Canadian children and young adults, causing destruction and loss of function of the lungs, which eventually leads to death in most people with CF.
Many of the biggest advancements in CF research, including the discovery of the CF gene in 1989, have been made by researchers funded by Cystic Fibrosis Canada. In F2019, CFC invested $6.1m to fund 45 research projects and 29 postdoctoral fellowships, making up 54% of program costs. Research topics include gene therapy, CF-related diabetes, lung inflammation, personalized medicine, CFTR proteins, quality of life and lung infections. In July 2018, CF Canada launched CFC Accelerated Clinical Trials Network to build capacity to run clinical trials and increase the participation of CF patients in clinical trials.
In F2019, 30% of program costs were allocated toward CFC’s clinical care and advocacy programs. The charity supported 42 CF clinics, awarding each with Clinic Incentive grants for continued professional development and for travel costs to outreach centres. The 42 clinics support 4,300 Canadians across the country.
Cystic Fibrosis Canada also has Education and Public Awareness programs that make up 15% of program costs. The 2017 Cystic Fibrosis Awareness Month campaign resulted in 12,601 Canadians signing a petition calling for public coverage of ORKAMBI, the medication used to treat the most common type of CF.
Other program costs make up the remaining 1% of program costs.
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Results and Impact
Since 1960, Cystic Fibrosis Canada has invested more than $261m in research, innovation and care of CF. The 2016 Canadian Cystic Fibrosis Registry shows that the median age of survival in Canada is steadily increasing and is among the highest in the world at 53.3 years.
Since 2006, CF Canada has been calling on the Quebec government to adopt newborn screening for early detection of CF. In 2017, Quebec was the last province to commit to newborn screening for CF, and the program launched in spring 2018.
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Finances
Cystic Fibrosis Canada is a large charity, receiving $17.0m in donations and special event fundraising in F2018. Administrative costs are 17% of revenues, excluding investment income. Fundraising costs are 9% of donations and special event fundraising. For every dollar donated, 75 cents go to CFC’s programs. This is within Ci’s reasonable range for overhead spending. CFC’s funding reserves of $14.0m include $94k in donor-endowed funds. Excluding endowed funds, the charity's reserves can cover program costs for 1.2 years.
This charity report is an update that has been sent to Cystic Fibrosis Canada for review. Changes and edits may be forthcoming.
Updated on June 4, 2019 by Caroline McKenna.
Financial Review
Fiscal year ending January
|
2018 | 2017 | 2016 |
|---|---|---|---|
| Administrative costs as % of revenues | 16.5% | 16.5% | 15.1% |
| Fundraising costs as % of donations | 8.7% | 8.3% | 6.3% |
| Total overhead spending | 25.2% | 24.7% | 0.0% |
| Program cost coverage (%) | 122.9% | 141.9% | 146.8% |
Summary Financial StatementsAll figures in $000s |
2018 | 2017 | 2016 |
|---|---|---|---|
| Donations | 16,364 | 15,370 | 16,428 |
| Business activities (net) | 552 | 722 | 522 |
| Special events | 670 | 666 | 862 |
| Investment income | 924 | 972 | (56) |
| Other income | 357 | 161 | 219 |
| Total revenues | 18,867 | 17,891 | 17,975 |
| Program costs | 4,162 | 3,579 | 3,401 |
| Grants | 7,157 | 6,983 | 7,323 |
| Administrative costs | 2,960 | 2,785 | 2,716 |
| Fundraising costs | 1,486 | 1,324 | 1,097 |
| Other costs | 0 | 4 | (28) |
| Total spending | 15,765 | 14,671 | 0 |
| Cash flow from operations | 3,102 | 3,216 | 3,466 |
| Capital spending | 0 | 0 | 0 |
| Funding reserves | 13,996 | 15,076 | 15,830 |
Note: Ci did not report amortization of deferred capital contributions as revenue and included realized and unrealized investment income, affecting total revenue by $910k in F2018, $958k in F2017, and ($70k) in F2016. Ci backed out amortization of capital assets from program costs to report on a cash basis.
Salary Information
$350k + |
0 |
$300k - $350k |
0 |
$250k - $300k |
1 |
$200k - $250k |
0 |
$160k - $200k |
3 |
$120k - $160k |
5 |
$80k - $120k |
1 |
$40k - $80k |
0 |
< $40k |
0 |
Information from most recent CRA Charities Directorate filings for F2018
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Comments & Contact
Comments added by the Charity:
Charity Contact
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