Cystic Fibrosis Canada

2323 Yonge Street, Suite 800
Toronto, ON M4P 2C9
President & CEO: Norma Beauchamp
Board Chair: James Mountain

Website: www.cysticfibrosis.ca
Charitable Reg. #: 10684 5100 RR0001

Sector: Health

Operating Charity

Charity Rating

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Results Reporting

Grade: B+

The grade is based on the charity's public reporting of the work it does and the results it achieves.

Financial Transparency

Audited financial statements for current and previous years available on the charity's website [Audited financial statement for most recent year]

Need for Funding

Funding Reserves Program Costs

Spending Breakdown

Cents to the Cause

♦	♦	♦
			95¢



			75¢
			avg
			65¢


			50¢

2014	2015	2016

For a dollar donated, cents funding the cause after fundraising and admin costs, excluding surplus.

Full-time staff #59

Avg. Compensation $72,832

Top 10 Staff Salary Range

$350k +	0
$300k - $350k	0
$250k - $300k	1
$200k - $250k	0
$160k - $200k	1
$120k - $160k	2
$80k - $120k	6
$40k - $80k	0
< $40k	0

Information from most recent CRA Charities Directorate filings for F2015

About Cystic Fibrosis Canada:

Founded in 1960, Cystic Fibrosis Canada’s (CF Canada) mission is to “help all people living with CF by funding targeted world-class research, supporting and advocating for high-quality individualized CF care.” Its vision is “a world without cystic fibrosis.” CF Canada reports that one in every 3,600 children born in Canada will have CF and that the genetic disease results in a median life expectancy of 52 years. There is no cure for the disease.

Cystic Fibrosis Canada’s Research program provides grants to researchers focused on the cause and treatment of CF. Research topics include gene therapy, CF-related diabetes, lung inflammation, personalized medicine, CFTR proteins, quality of life and lung infections. In F2016, CF Canada invested $5.3 million in cystic fibrosis research, making up 49% of its program spending. It funded 46 studies, 24 fellows and students, and 8 targeted research programs and partnerships.

Cystic Fibrosis Canada’s Clinical Care program provides grants to CF clinics to ensure that personnel are available to serve CF patients. The grants also fund professional development courses for clinic personnel. In F2016, CF Canada invested $2.2 million in 42 CF clinics and associated outreach centres, making up 20% of its program spending. The 42 clinics support 4,100 Canadians across the country. CF Canada also reports that 34 CF patients received transplants during the year. Cystic Fibrosis Canada also has Education and Public Awareness programs (13% of program spending) and Advocacy programs (3% of program spending).

Financial Review:

Cystic Fibrosis Canada is a large charity, with donations and special events revenues of $17.3m in F2015. Its administrative costs are 15% of revenues and its fundraising costs are 30% of donations. For every $1 donated to the charity, 55 cents is put towards its programs, falling outside of Ci’s reasonable range. Cystic Fibrosis Canada’s funding reserves of $16.3m include $94k in donor-endowed funds. This results in a program cost coverage ratio, excluding donor-endowed funds, of 152%. This means that the charity can cover 1.5 years of its annual programs using its existing reserves.

This charity report is an update that is being reviewed by Cystic Fibrosis Canada. Changes and edits may be forthcoming.

Updated on July 20, 2016 by Lynn Tay.

Financial Ratios Fiscal year ending January	2016	2015	2014
Administrative costs as % of revenues	15.1%	15.4%	15.3%
Fundraising costs as % of donations	29.6%	31.6%	30.7%
Program cost coverage (%)	152.3%	172.4%	163.4%

Summary Financial Statements All figures in $000s	2016	2015	2014
Donations	16,428	15,374	15,321
Business activities (net)	522	347	328
Special events	862	953	1,117
Investment income	(56)	1,361	1,907
Other income	219	155	151
Total revenues	17,975	18,190	18,824
Program costs	2,064	1,913	1,924
Grants	8,660	7,984	8,226
Administrative costs	2,716	2,586	2,590
Fundraising costs	5,123	5,155	5,038
Other costs	(28)	(86)	(29)
Cash flow from operations	(560)	638	1,075
Funding reserves	16,337	17,066	16,587

Note: Ci has adjusted amortization of deferred capital contributions, investment income and unrealized gain on investments affecting revenues by ($70k) in F2016, by $1.3m in F2015, and by $1.9m in F2014. Ci has adjusted direct fundraising costs, unrealized derivative loss on foreign exchange contract and amortization of capital assets affecting expenses by $4m in F2016, by $4.2m in F2015, and by $4.1m in F2014.

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