ALS Society of Canada

393 University Avenue, Suite 1701
Toronto, ON M5G 1E6
CEO: Tammy Moore
Board Chair: Patrick Nelson

Charitable Reg. #:10670 8977 RR0002


Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 4/5]



Audited financial statements for current and previous years available on the charity’s website.



Grade based on the charity's public reporting of the work it does and the results it achieves.



The demonstrated impact per dollar Ci calculates from available program information.


Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.



For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 64 cents are available for programs.

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About ALS Society of Canada:

ALS Society of Canada is a 4-star rated charity with best practice in financial transparency and above average accountability to donors as seen in the A- results reporting grade. For every dollar donated to this charity, 64 cents go to the cause. This is just outside Ci's reasonable range for overhead spending.

Founded in 1977, ALS Society of Canada (ALS Canada) works to improve the lives of people living with amyotrophic lateral sclerosis (ALS) and create a future without the disease. ALS causes a progressive degeneration of motor neurons in the nervous system, which leads to impaired muscle movement, muscle weakness, impaired speech, and difficulty breathing. Currently, there is no cure for the disease and 80% of people with ALS die within 2-5 years. ALS Canada’s core programs consist of Community Services, National Research, Public Awareness, and Advocacy.

In F2021, ALS Canada allocated 44% of program spending to Community Services. The Community Services program provides equipment and support to people living with ALS. In F2021, the equipment program provided 2,309 pieces of equipment worth $1.4m to Ontarians living with the disease. ALS Canada’s Community Leads also supported 1,240 patients through virtual and in-person visits. Further, the charity held 192 support group meetings that saw 1,536 attendees.

In F2021, ALS Canada allocated 38% of spending to National Research. ALS Canada supported 16 research grants in F2021. This money funded nine new research projects with a focus on discovering a cure for ALS, five trainee research awards with a goal of creating the next generation of ALS researchers and two projects with a focus on increasing access to clinical trials. The charity also hosted the ALS Canada Research Forum, consisting of 2 days of scientific presentations with 319 attendees.

In F2021, ALS Canada allocated 11% of program spending to Advocacy. ALS Canada’s Advocacy program engages officials in the federal and provincial governments to represent people living with ALS. In F2021, ALS Canada held 25 federal meetings and 5 provincial meetings with Canadian politicians to advocate for the needs of ALS patients. Currently, ALS Canada is fighting to reduce Health Canada approval time for new ALS drugs. In F2021, 8,000+ Canadians sent letters to federal party leaders through ALS Canada’s website for expedited access to approved ALS treatments.

ALS Canada allocated 5% of program spending to Public Awareness in F2021. 349 teams and 1,535 individuals participated in the charity's virtual Walk to End ALS and 75 cyclists participated in the charity's Revolution Ride. These events aim to raise awareness for the disease and honour patients who have passed away.

ALS Canada allocated the remaining 3% of program spending to other charitable expenses.

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Results and Impact

In F2021, there was a 58.5% increase in Community Services support group attendees. Two Canadian researchers received prestigious awards at the International Symposium on ALS/MND (motor neuron disease).

The charity also supported affordable access to Radicava, medication used to treat ALS and advocated for ALS patients and caregivers to have priority access to second doses of covid-19 vaccine.

While Ci highlights these key results, they may not be a complete representation of ALS Canada's results and impact.

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In F2021, ALS Society of Canada reported total donations of $7.4m. Administrative costs are 5% of revenues (excluding investment income) and fundraising costs are 31% of donations. This means overhead costs are 36%. For every dollar donated to the charity, 64 cents go to the cause. This is just outside Ci’s reasonable range for overhead spending.

ALS Society of Canada has funding reserves of $13.9m, of which $1.3m is donor-endowed. Like many charities funding medical research, ALS Canada has multi-year funding commitments. In F2021, ALS Canada's research grant commitments totalled $2.9m, with $1.4m to be granted in 2022. Excluding ALS Canada's donor-endowed funds, the charity’s funding reserves can cover annual program costs and research grants for roughly 2.3 years.

This charity report is an update that has been sent to ALS Society of Canada for review. Comments and edits may be forthcoming.

Updated on July 4, 2022 by Angelina Curwin.

Financial Review

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 5.5%5.3%4.1%
Fundraising costs as % of donations 30.6%29.5%21.4%
Total overhead spending 36.0%34.8%25.6%
Program cost coverage (%) 228.5%240.4%244.6%

Summary Financial Statements

All figures in $000s
Donations 7,3976,49710,142
Goods in kind 185180361
Lotteries (net) 182035
Investment income 806150(16)
Total revenues 8,4066,84710,522
Program costs 4,0673,8834,688
Grants 1,5152,1841,575
Administrative costs 414353433
Fundraising costs 2,2611,9172,175
Other costs 000
Total spending 8,2588,3368,871
Cash flow from operations 148(1,489)1,651
Capital spending 000
Funding reserves 13,90715,72716,462

Note: Ci adjusted for unrealized gains and losses, affecting revenues by $427k in F2021, ($464k) in F2020, and ($387k) in F2019. Ci reports lotteries net of expenses, decreasing revenues and expenses by $16k in F2021, $17k in F2020, and $43k in F2019.    

Salary Information

Full-time staff: 41

Avg. compensation: $62,636

Top 10 staff salary range:

$350k +
$300k - $350k
$250k - $300k
$200k - $250k
$160k - $200k
$120k - $160k
$80k - $120k
$40k - $80k
< $40k

Information from most recent CRA Charities Directorate filings for F2020

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

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Charitable Registration Number: 80340 7956 RR0001