Richmond, BC V6V 2X7
Executive Director: Wendy Toyer
Board President: Vandhana Misri
Charitable Reg. #: 10670 8985 RR0001
Grade: BThe grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Full-time staff #9
Avg. Compensation $55,974
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||0|
|$160k - $200k||0|
|$120k - $160k||1|
|$80k - $120k||1|
|$40k - $80k||4|
About ALS BC:
Founded in 1981, the Amyotrophic Lateral Sclerosis Society of British Columbia (ALS BC) helps improve the lives of people affected by ALS – this includes ALS patients, family members and caregivers. The disease is debilitating and has an average life expectancy of 3-5 years after diagnosis. ALS BC states that roughly 4,000 Canadians live with the disease. Patients suffer from progressive muscle loss and need extensive care services and equipment. ALS BC has 3 major program spending buckets: direct support to ALS patients and families; research funding for projects that study treatments and cures for ALS; and promoting public awareness on issues ALS patients face.
Patient Services is ALS BC’s largest program and includes 8 subprograms. The Equipment Loan program helps people with ALS afford mobility and lift equipment, beds, communication devices and bathroom aids. ALS BC has 2,900 pieces of equipment available to eligible people. The charity reports making 2,331 equipment deliveries, filling 1,727 equipment requests and responding to 1,394 cleaning & repair requests in F2016. The Care Connections program helps lighten the load of caregiver responsibilities by helping caregivers – 39 families use the program as of F2016, increasing from 25 families in F2015. Support Groups are run by trained volunteers for ALS patients, family members, caregivers and friends who want to talk about issues related to the disease. The charity ran 65 meetings in F2016. Camp Alohi Lani is a camp for kids with family members living with ALS. 26 campers participated in F2016. Psychological Treatment Services give ALS patients, family members and caregivers access to therapy and counselling by registered psychologists. Transportation Support is a service for ALS patients attending events and appointments offered by ALS BC – the charity made 292 trips in F2016. ALS BC also runs Mobile Clinics in remote communities as well as Caregiver Days for caregivers who need a day of rest.
ALS BC also contributes to research funding controlled by ALS Canada. ALS BC reported $54k in research grants to ALS Canada in F2016, which is 5% of total program costs. Included in funded research is Project MinE. This project receives support from 15 countries and aims to map DNA profiles of 15,000 ALS patients. From this data, researchers hope to find a genetic signature amongst ALS patients that explains disease development. ALS Canada also reports 10 active clinical trials for therapies that slow disease progression or treat ALS symptoms.
ALS BC is a medium-sized charity with total donations and special events fundraising of $1.5m in F2016. Administrative costs are 16% of revenues and fundraising costs are 17% of donations. Per dollar donated, $0.67 goes to the cause. This falls just within Ci’s reasonable range for overhead spending.
ALS BC holds funding reserves of $2.1m, of which $1.8m are donor-endowed. Excluding donor-endowed funds, the charity’s reserves can cover only 33% of annual program costs, indicating a funding need.
This charity report is an update that is currently being reviewed by ALS BC. Comments and edits may be forthcoming.
Updated on May 11, 2017 by Katie Khodawandi.
Financial RatiosFiscal year ending December
|Administrative costs as % of revenues||16.1%||11.8%||6.0%|
|Fundraising costs as % of donations||17.3%||17.2%||12.6%|
|Program cost coverage (%)||223.2%||192.2%||58.8%|
Summary Financial StatementsAll figures in $s
|Goods in kind||207,128||307,399||356,939|
|Fees for service||2,710||3,293||4,000|
|Business activities (net)||166,500||159,000||149,000|
|Cash flow from operations||530,215||841,113||915,270|