Muscular Dystrophy Canada
Toronto, ON M4P3A2
CEO: Barbara Stead-Coyle
Board Chair: Michael Kaye
Charitable Reg. #: 10775 5837 RR0001
Grade: B-The grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Cents to the Cause
Full-time staff #50
Avg. Compensation $68,820
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||0|
|$160k - $200k||1|
|$120k - $160k||2|
|$80k - $120k||7|
|$40k - $80k||0|
About Muscular Dystrophy Canada:
Founded in 1954, Muscular Dystrophy Canada (MDC) provides support services to people living with muscular dystrophy and related muscle disorders. These conditions, called neuromuscular disorders, are a group of diseases that cause progressive muscle weakness and dysfunction. There is currently no cure for the 50,000 Canadians with these disorders. With a mission to find a cure in our lifetime, the MDC funds research to better understand the causes of the disease and develop curative treatments.
MDC’s largest program helps people pay for essential support equipment, accounting for 39% of total program costs in F2018. Through the financial assistance program, the charity invested $1.2m to help purchase 813 pieces of equipment valued at $4.9m. This equipment includes mobility aids, orthopaedic devices, accessibility aids, and breathing aids.
MDC’s research programs accounted for 22% of program costs in F2018. The charity funded seven grants to support neuromuscular research with a focus on clinical trials, new treatments, and affordable medication.
In F2018, Muscular Dystrophy Canada provided support and information to people with neuromuscular disorders, family members, caregivers, and healthcare professionals through 11,445 calls and emails. This year, 231 people participated in the charity’s Family and Caregiver Retreats. Participants were able to build connections and attend educational and peer support sessions. MDC also works to raise awareness about neuromuscular disorders among the public through educational campaigns and events like the Walk for MD, which saw 3,409 participants this year.
Results and Impact:
Muscular Dystrophy Canada partially funded an international research team co-led by SickKids Hospital and Vrije Universiteit Brussel in Belgium. The team determined how myotonic dystrophy (a form of muscular dystrophy) is carried through families by a phenomenon called the parent-of-origin effect. Their work provides an understanding of how congenital myotonic dystrophy is carried by the mother and passed down to the child. The research was published in American Journal of Human Genetics in 2017. The team aims to extend their findings to develop a DNA diagnostic marker for prenatal testing for the disease.
Muscular Dystrophy Canada is a large charity, receiving $8.6m in donations in F2018. Administrative costs are 21% of revenues, excluding investment income. Fundraising costs are 33% of donations. For every dollar donated, 46 cents go to MDC’s programs. This is outside of Ci’s reasonable range for overhead spending.
This report is an update that was sent to Muscular Dystrophy Canada for review. Comments and edits may be forthcoming.
Updated on May 31, 2019 by Caroline McKenna.
Financial RatiosFiscal year ending March
|Administrative costs as % of revenues||21.4%||25.1%||23.7%|
|Fundraising costs as % of donations||32.6%||44.4%||45.5%|
|Program cost coverage (%)||75.1%||83.2%||343.1%|
Summary Financial StatementsAll figures in $000s
|Cash flow from operations||972||175||(123)|