Muscular Dystrophy Canada

40 Eglinton Ave East, Unit 500
Toronto, ON M4P 3A2
CEO: Stacey Lintern
Board Chair: David Crawford

Charitable Reg. #:10775 5837 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 3/5]

✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

B

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

40%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 40 cents are available for programs.



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OVERVIEW

About Muscular Dystrophy Canada:

Muscular Dystrophy Canada is a 3-star charity. It has an average results reporting score and is financially transparent. However, it has high overhead spending.    

Founded in 1954, Muscular Dystrophy Canada (MDC) supports people living with neuromuscular disorders (NMDs). These conditions are incurable and cause progressive muscle weakness and dysfunction. MDC also funds research to improve treatments and find a cure for NMDs.

Muscular Dystrophy Canada has four main programs: Services, Research, Education & Information, and Advocacy.  

Services accounted for 55% of program spending in F2022. This program funds equipment purchases, medical travel, and activities for those with NMDs. In F2022, Muscular Dystrophy Canada put 61% more funding towards equipment purchases than in F2021. The charity also had 420 people register with it during F2022.  

Research accounted for 22% of program spending in F2022. This year, the charity invested $1.3 million in research. During F2022, it funded nine new research projects and five fellowships. Of these fellowships, three were for clinical researchers and two were for post-doctoral researchers.  

Education and Information accounted for 16% of program spending in F2022. MDC provides information for people with NMDs, family members, and healthcare professionals. Currently, Muscular Dystrophy Canada has 12 resources on its website.  

Advocacy is MDC's final major program, accounting for 7% of program spending in F2022. The charity hosted a conference about the transition to adulthood for people with NMDs. In total, the charity has released seven advocacy statements to push for new laws. 

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Results and Impact

Charity Intelligence found Muscular Dystrophy Canada reported many stories but little data on its work. In F2019, the charity’s advocacy work led the government to pass Bill C-81, the Accessible Canada Act. This bill prevents discrimination against people with disabilities. In F2022, 10 out of the 13 provinces and territories advanced their newborn screening policies for spinal muscular atrophy after MDC’s advocacy campaigns. Alberta, Saskatchewan, Manitoba, Yukon, Nunavut, and Ontario have screening policies in place. Quebec, New Brunswick, Nova Scotia, and Prince Edward Island are planning screening policies. 

While Ci highlights these key results, they may not be a complete representation of Muscular Dystrophy Canada’s results and impact. This charity is not yet rated on impact (n/r).

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Finances

Muscular Dystrophy Canada has donations of $5.9m in F2022. The charity received $587k in government funding, representing 7% of total revenues. Administrative costs are 30% of revenues (less investment income) and fundraising costs are 30% of donations. This results in total overhead spending of 60%. For every dollar donated, 40 cents go to the cause. This is outside of Ci’s reasonable range for overhead spending. MDC has been outside of this range since its first analysis in 2012. 

Muscular Dystrophy Canada has $9.2m in funding reserves. The charity could cover 148% or around one year and six months of annual program costs with current reserves. 

This charity report is an update that has been sent to Muscular Dystrophy Canada for review. Changes and edits may be forthcoming.  

Updated on June 9, 2023 by Clive Stevens.

Financial Review


Financial Ratios

Fiscal year ending March
202220212020
Administrative costs as % of revenues 29.7%28.9%25.0%
Fundraising costs as % of donations 30.3%40.8%32.5%
Total overhead spending 60.0%69.7%57.5%
Program cost coverage (%) 148.2%275.9%174.0%

Summary Financial Statements

All figures in $000s
202220212020
Donations 5,8784,2247,355
Government funding 5871,313114
Investment income 5931,383423
Other income 8801,8171,341
Total revenues 7,9398,7369,233
Program costs 6,1913,9266,019
Administrative costs 2,1812,1272,202
Fundraising costs 1,7791,7242,388
Other costs 545465
Total spending 10,2067,83010,674
Cash flow from operations (2,267)906(1,441)
Capital spending 0036
Funding reserves 9,17410,83210,474

Note: To report on a cash basis, Ci adjusted donations by changes in deferred revenue from non-government sources. This affected revenues by ($313k) in F2022, $957k in F2021, and ($116k) in F2020. Ci recognized unrealized gains (losses) on investments, affecting total revenues by ($215k) in F2022, $941k in F2021, and ($39k) in F2020. The charity does not report government funding on its audited financial statements. Ci reporting government funding from the charity’s T3010 filing with the CRA and removed the amounts from donations. Ci reported management fees which affected expenses by $54k in F2022, $54k in F2021, and $65k in F2020. Ci also adjusted expenses by amortization. This affected expenses by $34k in F2022, $43k in F2021, and $60k in F2020.

Salary Information

Full-time staff: 52

Avg. compensation: $74,477

Top 10 staff salary range:

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
0
$160k - $200k
1
$120k - $160k
3
$80k - $120k
6
$40k - $80k
0
< $40k
0

Information from most recent CRA Charities Directorate filings for F2022

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

Website: www.muscle.ca
This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 1-800-567-2873

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Charitable Registration Number: 80340 7956 RR0001