Parkinson Canada

4211 Yonge Street, Suite 316
Toronto, ON M2P 2A9
CEO: Joyce Gordon
Board Chair: Daphne Fitzgerald

Charitable Reg. #:10809 1786 RR0001

STAR RATING

Ci's Star Rating is calculated based on the following independent metrics:

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✔+

FINANCIAL TRANSPARENCY

Audited financial statements for current and previous years available on the charity’s website.

B+

RESULTS REPORTING

Grade based on the charity's public reporting of the work it does and the results it achieves.

n/r

DEMONSTRATED IMPACT

The demonstrated impact per dollar Ci calculates from available program information.

NEED FOR FUNDING

Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.

53%

CENTS TO THE CAUSE

For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 53 cents are available for programs.



My anchor

Programs

About Parkinson Canada:

Founded in 1965, Parkinson Canada (formerly Parkinson Society of Canada) works to lower the burden of Parkinson’s disease by funding research for a cure, advocating for people living with Parkinson’s, and running education and support services for patients, caregivers and doctors. Parkinson’s is a degenerative brain disease that affects movement and motor skills. It often causes tremors, slowed movements, muscle stiffness and poor balance. There is currently no cure for Parkinson’s and the disease progresses at different rates for different people. 

Parkinson Canada runs an education and services program that made up 49% of program costs in F2018. The charity runs presentations that educate health care professionals (HCP) about new research findings, treatment strategies and general effects of Parkinson’s on patients. The charity’s support services for F2018 included 9,446 requests for information, 5,849 educational webinar views and 3,137 podcasts played, and support material downloads 38,369 times. Parkinson Canada also distributed 3,605 copies of Parkinson's Disease & Driving, a tool to help patients assess their driving abilities.  

Parkinson Canada runs a National Research Program that funds research projects looking for a cure for the disease. The program made up 30% of Parkinson Canada’s program costs in F2018The charity funded 24 researchers for the 2018-2020 research cycle. This includes five research projects studying Parkinson’s biomarkers, eleven projects studying causes of Parkinson’s, two projects studying complications, three projects studying neuroprotection, one project studying quality of life, and two clinical fellowships 

In 2018, Parkinson Canada, in partnership with Brain Canada, reported the creation of the Canadian Open Parkinson Network (C-OPN), an online research network featuring a patient registry, database for diagnostics, and biobank with patient biomaterials. The network is designed to allow researchers across multiple sites and provinces to collaborate and accelerate discoveries. 

Parkinson Canada also runs an advocacy program that reaches out to the Canadian government for policy changes that will improve the quality of life for people with Parkinson’s. Advocacy efforts made up 6% of program costs in F2018. Parkinson Canada works towards equitable access to treatments for all Canadians living with Parkinson’s disease. In 2018, the charity provided patient evidence submissions to Canadian Agency for Drugs and Technologies in Health on two drugs (Movapo and Duodopa), both of which received recommendations to be covered by provincial drug plans. 

Ci notes that community development made up the remaining 15% of program costs in F2018. 

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Results and Impact

Parkinson Canada Research funds innovative research to search for better treatments and a cure. Université de Montréal researcher Diana Matheoud has identified the way cells respond to infection or stress as a potential indicator of the onset of Parkinson’s disease. Her team found that changes in immune reaction pathway (called antigen presentation) lead to breakdown of the mitochondrion (a structure responsible for generating energy in cells). Future development of a test that would indicate that reaction could indicate the presence of Parkinson’s disease much earlier than current diagnoses.  

Parkinson Canada advocates with federal and provincial governments on issues affecting those living with Parkinson’s. The charity has been one of many patients’ groups advocating for a national pharmacare plan. As a result of these combined efforts, the federal government has committed to introducing a plan for national pharmacare. In 2018, the Parkinson Canada’s representatives attended consultations held by the government-appointed Advisory Council on the Implementation of National Pharmacare. The Council is expected to release a report in 2019 that Parkinson Canada and others will respond to.  

My anchor

Finances

Parkinson Canada is a large charity with total donations and special events fundraising of $10.2m in F2018. Administrative costs are 18% of revenues (excluding investment income) and fundraising costs are 29% of donations and special events. For every dollar donated to the charity, 53 cents go towards the charity’s programs, which is outside of Ci’s reasonable range for overhead spending. Parkinson Canada’s funding reserves of $9.5m include a $230k endowment fund. Excluding endowed funds, the charity’s reserves can cover annual program costs for 1.7 years.

Included in the financial notes are research and fellowship grants commitments of $1.0m in F2019 and $292k in F2020.

Ci used the charity's T3010 CRA filings to gather grants figures and backed the amounts out of program costs. 

This charity report is an update that was sent to Parkinson Canada for review. Comments and edits may be forthcoming.

Updated on July 3, 2019 by Caroline McKenna.

Financial Review


Financial Ratios

Fiscal year ending December
201820172016
Administrative costs as % of revenues 17.9%23.1%17.8%
Fundraising costs as % of donations 29.3%34.2%24.7%
Total overhead spending 47.2%57.3%42.5%
Program cost coverage (%) 176.0%191.1%219.1%

Summary Financial Statements

All figures in $000s
201820172016
Donations 7,2335,8788,702
Special events 2,9643,0392,419
Investment income (49)378213
Other income 261251209
Total revenues 10,4089,54611,543
Program costs 4,2544,0144,791
Grants 1,1551,0350
Administrative costs 1,8682,1192,013
Fundraising costs 2,9893,0482,749
Total spending 10,26610,2169,553
Cash flow from operations 142(669)1,990
Capital spending 4483640
Funding reserves 9,5219,65010,497

Note: Ci backed out amortization on a pro-rata basis from program, administrative and fundraising costs. Ci backed out non-cash gains and added back non-cash losses on sale of property and equipment in other income, affecting revenues by $7,508 in F2018, $3,113 in F2017, and $540 in F2016.

Salary Information

Full-time staff: 72

Avg. Compensation $69,922

Top 10 staff salary range

$350k +
0
$300k - $350k
0
$250k - $300k
0
$200k - $250k
1
$160k - $200k
0
$120k - $160k
3
$80k - $120k
6
$40k - $80k
0
< $40k
0

Information from most recent CRA Charities Directorate filings for F2018

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Comments & Contact

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Charity Contact

Website: www.parkinson.ca
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