Crohn's and Colitis Canada
Toronto, ON M4T 1N5
President & CEO: Mina Mawani
Board Chair: Byron Sonberg
Charitable Reg. #: 11883 1486 RR0001
Grade: A-The grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Cents to the Cause
Full-time staff #50
Avg. Compensation $73,555
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||1|
|$160k - $200k||0|
|$120k - $160k||4|
|$80k - $120k||5|
|$40k - $80k||0|
About Crohn's and Colitis Canada:
Founded in 1974, Crohn’s and Colitis Canada (CCC) is the only national charity in Canada focused on finding the cures for Crohn’s disease and ulcerative colitis. These diseases are both major forms of inflammatory bowel disease (IBD). CCC states that 1 in 150 Canadians live with Crohn’s disease or ulcerative colitis, and Canada has one of the highest rates for these diseases in the world. People with Crohn’s disease suffer from inflammation anywhere in the gastrointestinal tract. Those with ulcerative colitis suffer from inflammation in the large intestine. There is currently no cure for either of these diseases.
In F2017, 75% ($6.7m) of CCC’s program spending went towards research. CCC has two main research priorities: Advancing Discovery and Improving Lives. Advancing Discovery funding focuses on recruiting top researchers across Canada, investigating causes and triggers, and discovering new treatments for IBD. Improving Lives funding focuses on improving symptom management, helping patients access the best care, and educating healthcare professionals on the latest and best IBD-related information. In F2017, CCC distributed 26 research grants and 10 training awards for undergraduate students. Through these activities, the charity funded 16 major hospitals and universities across Canada.
Education, awareness and advocacy spending made up 18% of CCC’s program spending in F2017. CCC’s advocacy program voices policy change proposals to the Canadian government. The proposals focus on improving treatment access, washroom availability and caregiver support. CCC’s awareness program aims to reduce the stigma surrounding IBD by educating the public on the issues patients face. In F2017, the charity brought IBD into the public eye with 200 million media impressions.
CCC also runs programs for patients with Crohn’s disease and colitis to improve their quality of life. These services made up 7% of the charity’s program spending in F2017. Some of its programs include Peer-to-Peer Support, the GoHere app, and Camp Got2Go. Over 10,000 people took part in their patient programs in F2017. Additionally, 15 IBD scholarships were awarded to students living with Crohn’s disease or ulcerative colitis.
Results and Impact: Due to Crohn’s and Colitis Canada’s research grants provided, 2,139 articles and book chapters were published by its researchers in F2017. While it does not affect the impact per dollar created by the charity, the charity reported that for every $1 invested in research, $8 was leveraged from government and industry. Because of CCC’s advocacy, two new IBD treatments were approved in Canada in F2017. Due to CCC’s awareness program, more than 200 stories related to Crohn’s and Colitis were published last year.
Crohn’s and Colitis Canada is a large charity with total donations and special events fundraising of $13.8m in F2017. Administrative costs are 10% of revenues and fundraising costs are 27% of donations and special events fundraising. Per dollar donated to the charity, $0.63 goes towards its programs and grants. This falls just outside of Ci’s reasonable range for overhead spending. CCC’s funding reserves of $12.4m include a $522k endowment fund. Excluding this endowment, the charity’s reserves can cover annual program and grant costs for 1.3 years.
Crohn’s & Colitis Canada reports that its seven-year Make it stop. For life. campaign has raised $57m since starting in F2014. This represents 99% of total revenue over the last four years. The charity aims to raise $100m by 2020.
CCC holds an internally-restricted research reserve fund that represents estimated amounts to be honored as future research grant commitments. As of F2017, the fund holds $3.3m in future research grants to be committed within the next 12 months.
This charity report is an update that has been sent to Crohn’s & Colitis Canada for review. Comments and edits may be forthcoming.
Updated on June 4, 2018 by Derek Houlberg.
Financial RatiosFiscal year ending June
|Administrative costs as % of revenues||9.9%||7.8%||11.6%|
|Fundraising costs as % of donations||26.9%||21.7%||31.8%|
|Program cost coverage (%)||138.2%||140.0%||105.9%|
Summary Financial StatementsAll figures in $000s
|Cash flow from operations||113||2,754||(495)|