Multiple Sclerosis Society of Canada
Toronto, ON M5T 2Z5
President & CEO: Pamela Valentine
Board Chair: Valerie Hussey
Charitable Reg. #: 10774 6174 RR0001
Grade: AThe grade is based on the charity's public reporting of the work it does and the results it achieves.
Need for Funding
Cents to The Cause
Full-time staff #313
Avg. Compensation $48,934
Top 10 Staff Salary Range
|$300k - $350k||0|
|$250k - $300k||0|
|$200k - $250k||2|
|$160k - $200k||3|
|$120k - $160k||4|
|$80k - $120k||0|
|$40k - $80k||0|
About Multiple Sclerosis Society of Canada:
Founded in 1948, the Multiple Sclerosis Society of Canada (MS Society of Canada) aims to “be a leader in finding a cure for multiple sclerosis and enable people affected by MS to enhance their quality of life.” The charity reports that Canada has the highest incidence of multiple sclerosis (MS) in the world, estimating that over 77,000 Canadian adults live with the disease. MS can cause vision problems, walking difficulties, pain and fatigue. To date, there is no known cure. The MS Society of Canada’s head office is in Toronto.
The MS Society of Canada has programs in four functional areas: research, client services, public education and advocacy. In F2017, the society granted $8.3m in grants for research. 51% of the charity’s grants went towards understanding triggers, progression and repair processes of the disease. 22% of grant funding went towards therapy and clinical tool development, 20% to cause and risk factors and 7% to symptom management. In F2017, 14 new grants were awarded to researchers. 23 different research institutions are currently hosting MS Society funded research.
The charity offers numerous support services to people affected by MS such as counseling, recreational programs and financial assistance. The MS Society of Canada runs a 1:1 Peer Support Program for its clients. This is a telephone and internet-based program that aims to reduce the social isolation and loneliness of people with MS. In F2017, there were 45 trained volunteers living with MS that were providing guidance to their peers.
The MS Society of Canada provides information about multiple sclerosis through the MS Knowledge Network. In F2017, the charity served over 2,600 people affected by MS and answered over 4,200 inquiries. Support was provided through multiple channels including social media, phone and email.
The charity advocates to help reduce barriers for people living with multiple sclerosis. It advocates for changes in three areas: allowing people with MS to remain in the workforce, improving income and disability support for people with MS, and increasing access to healthcare. In F2017, 5,048 letters were submitted to MPs.
After serving 11 years in various positions at Alberta Innovates, Pamela Valentine was named the new President and CEO of MS Society of Canada in January 2018.
Results and Impact: In 2017, a MS neurologist from the University of Calgary funded by the MS Society of Canada discovered how an affordable oral antibiotic (minocycline) can greatly reduce the risk of early disease progression in MS. In F2017, the charity reported 80% of people who have used the 1:1 Peer Support Program would recommend it to someone else affected by MS. It also stated that 89% of people were satisfied with their experience using the MS Knowledge Network. In 2018, Ocrevus (ocrelizumab) was approved by Health Canada as the first disease-modifying therapy available for early primary progressive MS.
Multiple Sclerosis Society of Canada is one of Canada’s largest charities, a Major 100, with donations and special events revenues of $48.6m in F2017. A large portion of its revenues are generated through community-based fundraising events, dinners, golf tournaments and third-party events. Its special events fundraising was 50% of revenues, at $26.0m in F2017. Administrative costs are 9% of revenues and its fundraising costs are 42% of donations. Per dollar donated to the charity, $0.49 goes towards its programs and research grants, which falls outside of Charity Intelligence’s reasonable range for overhead spending. Research grants account for only 16% of the charity’s total revenue.
The Multiple Sclerosis Scientific Research Foundation is a related party to the MS Society of Canada. To calculate the MS Society of Canada’s funding reserves, Ci has combined the balance sheets of the Society and the Research Foundation. In total, the two charities have a funding reserve of $37.7m, which include $615k of donor-endowed funds. Excluding donor-endowed funds, the charity can cover 1.5 years of annual program and granting costs.
This charity report is an update that has been sent to Multiple Sclerosis Society of Canada for review. Changes and edits may be forthcoming.
Updated on July 24, 2018 by Derek Houlberg.
Financial RatiosFiscal year ending December
|Administrative costs as % of revenues||8.8%||9.6%||7.5%|
|Fundraising costs as % of donations||42.5%||41.6%||42.2%|
|Program cost coverage (%)||156.5%||136.2%||124.5%|
Summary Financial StatementsAll figures in $000s
|Fees for service||33||52||34|
|Business activities (net)||61||75||122|
|Cash flow from operations||2,823||1,802||1,094|