Canadian Down Syndrome Society

Suite 223, 1001 1st St SE
Calgary, AB T2G 5G3
Executive Director: Laura LaChance
Board Chair: Jennifer Crowson

Charitable Reg. #:11883 0751 RR0001


Ci's Star Rating is calculated based on the following independent metrics:

[Charity Rating: 1/5]


Audited financial statements available only through official request for information from Charities Directorate.



Grade based on the charity's public reporting of the work it does and the results it achieves.



The demonstrated impact per dollar Ci calculates from available program information.


Charity's cash and investments (funding reserves) relative to how much it spends on programs in most recent year.



For a dollar donated, after overhead costs of fundraising and admin/management (excluding surplus) 60 cents are available for programs.

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About Canadian Down Syndrome Society:

Canadian Down Syndrome Society is a 1-star charity with a below-average results reporting score. The charity is not financially transparent and has overhead costs outside of Ci's reasonable range.

Founded in 1987, Canadian Down Syndrome Society (CDSS) works to empower Canadians with Down syndrome and their families. CDSS reports that approximately 45,000 Canadians are living with Down syndrome, and one in 781 live births results in a Down syndrome determination. The charity's work primarily involves public education and advocacy.

In F2022, Canadian Down Syndrome Society launched its Love Means photo essay campaign on World Down Syndrome Day. The campaign aimed to educate people about love, relationships, and emotions experienced by people with Down syndrome.

During Canadian Down Syndrome Week in F2022, the charity launched Inployable, the world's first employment space for people with Down syndrome, on LinkedIn. Over 700 people connected to this space in F2022. In F2022, the charity also released its new Mental Health and Wellness Hub and reported that it was accessed by 312 people across Canada.

In F2022, Canadian Down Syndrome Society published four issues of its 3.21 Magazine to raise awareness of Down syndrome. The magazine is designed for and about the Down syndrome community in Canada and was read by over 6,000 people each quarter. The charity also published numerous resources and publications on its website that were accessed by 14,700 people in F2022.

The data used above reflects CDSS' most recent 2022 Impact Report, while the analysis below reflects F2021 financial information. 

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Results and Impact

Charity Intelligence did not find any quantified outcomes on Canadian Down Syndrome Society's website. This may not be a complete representation of CDSS’s results and impact.

This charity is not yet rated on impact (n/r).

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Canadian Down Syndrome Society is not financially transparent. Its audited financial statements are not posted on its website nor provided when requested. Charity Intelligence's financial review uses the F2021 audited financial statements. This is the most recent information we have received from the Charities Directorate from our request for information. Charity Intelligence reports external fundraiser and salary information from the charity’s F2022 T3010 filings with the CRA.

Canadian Down Syndrome Society received donations of $1.4m in F2021. Administrative costs are 10% of revenues (less investment income) and fundraising costs are 30% of donations. This results in total overhead spending of 40%. For every dollar donated, 60 cents go to the cause. This is outside of Ci’s reasonable range for overhead spending and has been for the past four years.

CDSS has reserve funds of $789k, of which $64k is donor-endowed funds externally held at the Calgary Foundation. Excluding donor-endowed funds, the charity could cover a little over a year and one month of annual program costs with existing reserves.

In F2022, Canadian Down Syndrome Society paid external fundraisers $206k. These external fundraisers raised $584k in donations. This means it costs Canadian Down Syndrome Society $0.35 to raise $1 using external fundraisers.  

This charity profile is an update that has been sent to CDSS for review. Changes and edits may be forthcoming.

Updated on July 24, 2023 by Kiara Andrade.

Financial Review

Financial Ratios

Fiscal year ending December
Administrative costs as % of revenues 10.3%10.2%7.4%
Fundraising costs as % of donations 29.7%41.2%45.7%
Total overhead spending 40.0%51.4%53.1%
Program cost coverage (%) 110.5%116.6%81.3%

Summary Financial Statements

All figures in $s
Donations 1,367,6701,147,2181,148,917
Government funding 13,78362,10748,277
Fees for service 0670110,426
Business activities (net) 3772,317(2,782)
Special events 020,745150,240
Investment income 28,12921,84432,801
Total revenues 1,409,9591,254,9011,487,879
Program costs 659,503562,196824,811
Grants 014,0570
Administrative costs 142,774126,157108,108
Fundraising costs 406,239480,616593,791
Total spending 1,208,5151,183,0261,526,710
Cash flow from operations 201,44471,875(38,831)
Capital spending 15,32509,832
Funding reserves 789,205728,657727,585

Note: Investment income, investment management fees, and change in fair value of investments were included in revenues, affecting total revenues by $28k in F2021, $22k in F2020, and $33k in F2019. Product sales were reported less product costs. In F2019, it was determined that the charity did not qualify as eligible to receive casino funds after the year end. Ci therefore excluded casino revenues after F2019, affecting revenues by nil in F2021 and ($18k) in F2020. Program, administrative, and fundraising costs were reported from the charity's T3010 filing with the CRA and were adjusted for amortization on a pro-rata basis. Investment management fees were included in expenses, affecting expenses by $5k in F2021, $5k in F2020, and $7k in F2019.

Salary Information

Full-time staff: 7

Avg. compensation: $73,266

Top 10 staff salary range:

$350k +
$300k - $350k
$250k - $300k
$200k - $250k
$160k - $200k
$120k - $160k
$80k - $120k
$40k - $80k
< $40k

Information from most recent CRA Charities Directorate filings for F2022

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Comments & Contact

Comments added by the Charity:

No comments have been added by the charity.

Charity Contact

This email address is being protected from spambots. You need JavaScript enabled to view it. Tel: 403 270 8500


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Charitable Registration Number: 80340 7956 RR0001